CLIFTON PARK, N.Y. - A Bowl-A-Thon to help a toddler with a
rare, genetic skin condition will be held Sunday afternoon.
Baby Jax will turn two on August 20. He was born with Recessive Dystrophic EB
(RDEB). This condition does not allow
Baby Jax's body to produce a certain protein needed to hold skin onto his body,
which results in painful blisters.
Sunday, from noon to 4pm at Spare Time on Route 9 in Clifton
Park, a fundraiser is being held. The
cost is $20 per person. That cost covers
two games, one slice of pizza, and a small soda. There will also be music, a light show, and a
There is no cure for RDEB.
Baby Jax is raised by his single mother.