GUILDERLAND, N.Y. -- For the past four and a half years, Lori Rodino has struggled to make ends meet as her family fights a debilitating terminal illness -- Huntington's.
"It's a tough thing to accept and see them go through," she said.
Rodino is the only one in her family that doesn't have the genetic neurological disorder, losing her youngest daughter, Rachel, to Huntington's a few years ago.
"They say time heals, but it makes it worse. You miss them more," she said.
Huntington's Disease is an inherited brain disorder that results in the progressive loss of both mental faculties and physical control. Symptoms usually appear between the ages of 30 to 50, and worsen over a 10 to 25 year period. Ultimately, the weakened individual succumbs to pneumonia, heart failure or other complications.
Her other daughter and son were recently diagnosed with the disease, and her husband Rick has been battling its slow progression and is currently in its later stage.
"I can't do a fulltime job because I have to take care of Rick," she said.
The 24-hour caretaking has taken a toll on the Rodino family finances.
"There are times when I've had to deliver the paper in the morning, it's easier when everyone's sleeping," she added.
"What we've tried to do, is make it so she can stay and not do a paper route and take care of kids," said benefit organizer Kathy Burbank.
The benefit for the Rodino family was held at Five Guys and neighboring TCBY. As people bought food, a portion of their money went toward helping the family.
"We want to stand behind them when they need something help them," said family friend Alonna Rudloph.
It's a show of support that's overwhelming at times for Rodino.
"I could not stay in my house if it wasn't for them," she said.
Presently, there is no effective treatment or cure. Although medications can relieve some symptoms, research has yet to find a means of slowing the deadly progression of HD.
If you'd like to donate you still can. There will be a bike and car show Saturday, June 22nd at Crossgates Mall starting at 10am. The event will donate a portion of the proceeds to the family. Or you can visit the family's website and click on the "donate now" at the bottom of the page to make a donation.
Local News <a href="http://www.wten.com/category/173731/-local-news">More>></a>Local NewsMore>>
Saturday, March 8 2014 11:57 PM EST2014-03-09 04:57:06 GMT
SOUTH GLENS FALLS N.Y. – The 37TH Annual South High Marathon Dance kicks off tonight at 7 p.m. in the South Glens Falls High School gym. The Marathon Dance has been around for decades, starting with onlyMore >>
Exceeding expectations, the annual event brings in well over half-a-million dollars this year.More >>
SARATOGA SPRINGS, NY - Police are investigating a threatening phone call at the Four Winds Hospital on Crescent Avenue on Friday night. Hospital staff took the call at approximately 7:30 p.m., and initiatedMore >>
Police are investigating a threatening phone call at the Four Winds Hospital on Crescent Avenue on Friday night.More >>
TROY, NY - City officials are working on repairing a water main break on 15th Street between Hoosick and Hutton. That section of the road will remain closed until Sunday morning when the repair is slatedMore >>
City officials are working on repairing a water main break on 15th Street between Hoosick and Hutton. That section of the road will remain closed until Sunday morning when the repair is slated to be complete. Hoosick Street is open.More >>
FONDA, N.Y. – New York State Police are thanking the students at Fonda-Fultonville High School who volunteered for active shooter training. According to State Police, the training was conducted over theMore >>
New York State Police are thanking the students at Fonda-Fultonville High School who volunteered for active shooter training.More >>
FONDA, N.Y. – State Police say they have arrested a man for allegedly driving drunk and causing property damage. According to authorities, State Police received a report of a vehicle leaving the sceneMore >>
State Police say they have arrested a man for allegedly driving drunk and causing property damage.More >>
ALBANY, N.Y. – A Nobel Peace Prize nominee will be in Albany on Saturday. Kathy Kelly of Voices for Creative Nonviolence will rally in Townsend Park from 1:30 p.m. to 2:30 p.m. Kelly is a peace activistMore >>
A Nobel Peace Prize nominee will be in Albany on Saturday.More >>
ALBANY, N.Y. – This weekend marks the final weekend of skating at the Empire State Plaza ice rink. The NYS Office of General Services has announced that Sunday will be the final day of skating for theMore >>
This weekend marks the final weekend of skating at the Empire State Plaza ice rink.More >>
ALBANY, N.Y. – The Ninth Annual Hannaford Kidz Expo is Saturday. From 10 a.m. to 5 p.m. at the Empire State Plaza, the annual Kidz Expo will be held, courtesy of Hannaford. The Hannaford Kidz Expo offersMore >>
The Ninth Annual Hannaford Kidz Expo is Saturday.More >>
RENSSELAER, N.Y. – Students from 36 schools in three counties will come together on Saturday for the Region 4 Odyssey of the Mind Tournament. From 8:10 a.m. to 4:30 p.m. on Saturday at the RensselaerMore >>
Students from 36 schools in three counties will come together on Saturday for the Region 4 Odyssey of the Mind Tournament.More >>
SCHENECTADY, N.Y. – A fire broke out at St. Anthony's Church Friday evening. The call for the fire at 331 Seward Place came in around 6:30 p.m. The fire started in the basement and spread upward causingMore >>
A fire broke out at St. Anthony's Church Friday evening.More >>